Children with IBD: Overcoming Challenges

I recently attended a talk that I found inspiring and helpful, whether your personal challenge is inflammatory bowel disorder (IBD) or any other life issue.  The point that the speaker made is simple, yet one that is worth sharing: It is to remember that everyone has a problem or difficulty of some sort to deal with.

For some, like the motivational speaker I heard, it happens to be a very visible physical disability; for others, like many of our IBD patients, it can often be hidden, an invisible illness.  What is important to remember is that at the end of the day, we are all just people, not our illness. This goes along with my advice to parents of children diagnosed with IBD, that one of the best gifts you can offer your child is the gift of a normal happy life.

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Becoming a Health Advocate for your Children

While the new concept of a Geriatric Emergency Department is garnering attention recently, Mount Sinai’s Pediatric Emergency Department continues its tradition of innovation and excellence in caring for children during the most stressful of times.

Recent investments include staffing Child Life Specialists, whose role is to advocate for patient care and act as a liaison between patients, families and care providers.

Also, Pediatric Emergency physician Dr. Audrey Paul has spearheaded a community outreach, entitled, “How to Navigate an Emergency Room Visit with your Child.”  This innovative bilingual workshop was the first in a series of parent education initiatives for parents in low-income and underserved communities on preparing for pediatric emergencies. The project began at Little Sisters of the Assumption and will expand to additional areas to reach more families in underserved communities.

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